Pacifiers and Insulin

My need for planning is starting to consume me :   ) Our Disney World trip is coming up soon (FYI to any crazies reading this, soon could mean 5 days or 3 months so don’t go trying to figure out my schedule-also no point breaking into our home, we are now broke after this trip).   Anyhow, I am a bit obsessive when it comes to planning.   I have made several excel spreadsheets, including all rides at Magic Kingdom, Hollywood Studios, Epcot and Animal Kingdom (you know just a basic spreadsheet of what the rides are and if Cole would like them).   I have also done one with our dinning reservation times and our fastpass times for rides.   I have started a list of things needed for the trip including all of Cole’s medical supplies.   We have an appointment with Cole’s endo doctor so I can get any suggestions from her with dealing with heat and Cole’s pump for the trip. I have started ordering extra pump bands for Cole to wear on the trip.   I have ordered extra frio bags (cooling bags

So yesterday Cole was crying uncontrollably in daycare… this is very unlike Cole.  Even when Cole is sick he’s normally smiling and laughing.  So I brought him home and made a doctor’s appointment.  The doctor advised that Cole had a really bad ear infection and was wheezing.  Cole had been grabbing at his chest a lot and crying so we asked about that.  Doctor stated that it may be hard for Cole to breath and that might be why he was doing that.  So she gave him an antibiotic for his ear and told us to do breathing treatments every 4 hours.   Cole seemed to be doing much better after the antibiotic got in his system.  Cole has not been eating very well or drinking much in the past couple of days.  I guess normal behavior when one doesn’t feel well.  But what does that mean for a diabetic…. Now we  are checking his blood sugars every 3 hours and his ketones.  Yesterday afternoon he had large ketones.  Not good.  Cole’s body (along with everyone else’s) needs  glucose  for energy.  If th

So waking up in the middle of the night, sometimes several times a night, to check on your son that maybe having high blood sugar or low blood sugar that needs correcting can get exhausting (just like reading that run on sentence was exhausting).   I know that sounds crazy right.   Who would get exhausted from that???   Well normally we do a 2:00am check but sometimes his alarm goes off in the middle of the night saying he’s either high or low.   Or sometimes we stay up late to check him if his blood sugar was borderline low before going to sleep.   We don’t want to wake him and give him a juice prematurely because sometimes if you just give it a bit of time it starts shooting up high again without any correction from us.   So anyways the point of my story: 2 nights ago… hell it could have been 3 nights ago, they are all blurring together at this point, Cole’s alarm goes off at 12:30am.   I jump out of bed to go check him.   I grab his finger poker, meter, test strips and an al

Last night we made changes to Cole’s basal rate on his pump.   This is the amount of insulin his pump gives him continuously throughout the day and night.   For example we bumped Cole’s basal rate at 10pm to .275, 12am is now .175 and 5am is now .2.   Cole normally runs high from dinner until lunch so we are trying to up his insulin slowly until we are able to get him in a better range.   Of course bumping up insulin over the night time hours can be a scary thing.   This is when you worry that he will drop to low in his sleep and have a seizure or die.   Cole’s numbers have actually been really good the previous 2 nights so we were extra worried last night with the new addition of insulin.   Cole has had a cough for the past few nights and actually woke up about midnight and came to bed with us.   I checked his reading which was 250.   I did not want to correct then because I knew at midnight and at 5am he would be getting more insulin than normal.   I decided to wait until the 2

Oh family trips, what good times to be had by all J   Normally you have the general stress of planning your family vacation but throw a T1d kid into the mix.   So currently I have been planning our family vacation to the lovely Walt Disneyworld.   While we planned on waiting till Cole was older, I decided that his love for Mickey Mouse and all Disney characters he might enjoy seeing them in real life (well real costumes) now. So normally one would think about the following things when planning their family vacation: 1. when to go 2. where to stay 3. what to pack 4.   snacks 5. how far can we drive with kiddo 6. money 7. etc…   You know the normal family vacation stuff, but this is what is on my mind:   1.   Call doctor to get extra insulin just in case a bottle breaks or goes bad 2. make sure we have enough test strips, infusion sets for his pump, sensors, sensor charger, sensor inserter, meter, spare meter, meter charger, ketone strips, syringes incas